New Member Spotlight: Usher Syndrome Ireland

We are very pleased to welcome Usher Syndrome Ireland as the newest  member of DFI.

Founded in 2021, Usher Syndrome Ireland is a dedicated charitable organisation working to support individuals and families affected by Usher Syndrome,a rare genetic condition that causes combined hearing and vision loss.

Through information sharing, research, education, advocacy, and peer support, the organisation is building a strong, empowered community where no one has to navigate the journey of Usher Syndrome alone.

We are delighted to have Usher Syndrome Ireland as a member. Their commitment to lived experience and inclusive advocacy brings important perspective, and we look forward to collaborating with them in the years ahead.

To find out more about their work, visit their website.