Centre for Disability Law and Policy one-day conference

Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response

The Centre for Disability Law and Policy is co-hosting (in conjunction with the Burton Blatt Institute, Syracuse University, USA) a one-day conference entitled 'Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response', which may be of interest to you and your colleagues.  

The conference is taking place at the National University of Ireland, Galway on Saturday, 19th November, 2011.

The purpose of this conference is to examine the case for a European level legal and policy response to protect the privacy of genetic information and to prevent genetic discrimination, particularly in the employment and insurance contexts.

This conference will recount recent scientific advances that make genetic testing more and more accurate and more sophisticated (and which offers the prospect of being able to detect the onset of future disabilities).  It looks at the ethical debate on how to balance competing rights and interests (the right to privacy of the individual and the 'need to know' of business and other interests).

It examines the balance struck in the Genetic Information Nondiscrimination Act (2008) in the US.  Keeping in mind the technological advances (and its future orientation) the ethical context and the balance struck in the US legislation, it will examine the options for a European legal response possibly in the shape of a new non-discrimination (genetic information) Directive (or an amendment to existing Directives) and whether a sufficient case exists for such a response.

The conference is aimed at legal practitioners, medical practitioners, academics and researchers, NGOs and those involved in disability issues and practice.  It is also aimed at those interested in medical testing generally as well as genetic testing specifically and the implications of these practices.

For further information please see the Centre for Disability Law and Policy event page at

To register for this event please visit http://www.conference.ie/Conferences/AddRegistration.asp?Conference=139

For other enquiries and special requirements please contact: Róisín Fitzpatrick at +353 91 495888 /  +353 87 6660634 / info.cdlp@nuigalway.ie or Aisling de Paor at +353 91 494017 / aisling.depaor@nuigalway.ie

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